Our Team

The COVID-19 Longhauler Advocacy Project is entirely led by a team of people with Long COVID. We work tirelessly to support the Long COVID community by advancing awareness and understanding of Long COVID and its associated conditions as well as helping to shape research, clinical care, and policy ensuring patient and caregiver perspectives and lived experience are centered.
Board of Directors
At the COVID-19 Longhauler Advocacy Project, we are grateful to have a dedicated board of directors who are committed to giving guidance and direction to our team. Our patient-led focus drives our efforts, and we are proud of the team of experienced advocates who help us provide the support and advocacy longhaulers need.

Karyn Bishof
Founder and President
Karyn Bishof is a first-wave March 2020 Longhauler and former firefighter/paramedic whose career was cut short by Long COVID. Prior to that, she worked as a K–12 educator and Director of Athletics. She holds a Bachelor of Science in Exercise Science and Health Promotion. Karyn brings together her clinical and educational background, her lived experience as a mixed-Indigenous single mother, and her personal journey with Long COVID to advocate on behalf of the tens of millions impacted by Long COVID.
Karyn previously served on the National Academies of Sciences, Engineering, and Medicine (NASEM) committee that developed the U.S. Government’s official definition of Long COVID, and as a contributor to the AHRQ Long COVID Care Network. She currently serves as a Patient Advisor to the Council of Medical Specialty Societies’ Expert Panel on Long COVID education, engagement, and care management and on the NIH RECOVER Initiative’s Ancillary Studies Oversight Committee. In 2024, Karyn participated on a panel at the American Public Health Association on Infectious Disease Mitigation: A 21st Century Challenge. Karyn is also a recipient of the Amelia Moore Sparkle Award from Dysautonomia International for compassionate advocacy.
.jpg)
Ken Todd
Director of Communications & Community Outreach, Secretary
Ken Todd is a February 2021 Longhauler and Emmy-nominated former television marketing and communications executive with an MBA in corporate strategy and marketing. Ken is a long-time member of C19LAP, an 18-time marathoner, a member of the LGBTQ+ community, and has served as a C19LAP Division Lead for New York, New Jersey, Connecticut, and Rhode Island since 2023 . Ken has participated in multiple Long COVID studies and clinical trials at Mount Sinai and Yale University, and has shared his patient experience with multiple media outlets to help raise awareness of Long COVID.

Tammy Wilshire
Treasurer
Tammy Wilshire is a first-wave March 2020 Longhauler with a professional background in nursing, social services, and nonprofit work, as well as experience leading support groups. A long-standing volunteer with the COVID-19 Longhauler Advocacy Project (C19LAP), Tammy has served as a social media moderator, administrator, and Division lead. She is a passionate advocate for clinician education and for expanding healthcare accessibility in rural communities like her own. Tammy has shared her Long COVID journey through national media outlets, expert panels, and public health conferences, using her voice to advance awareness and change.

Brooke Keaton
Board Member
Brooke Keaton is a December 2020 Longhauler, former early childhood educator, and dedicated mother to two daughters, one of whom also has Long COVID. Brooke brings her passion for education, child health, and equity to her advocacy for underserved communities affected by Long COVID. She has shared her family’s story across media platforms, panel discussions, and conferences, and recently collaborated with the North Carolina Department of Health and Human Services on two public service announcements (PSA’s) about Long COVID.

Heather Morrissey
Board Member
Heather Morrissey is an August 2022 Longhauler and lives with several Long COVID associated conditions. Heather has been a long-time C19LAP member and Division Lead. She is a tax attorney for the WI Department of Revenue with 15 years of legal experience, holds a Juris Doctor (JD), and has extensive expertise in tax law, compliance, and policy. As a member of the LGBT+ community, Heather is passionate about disability rights, accessibility, and fostering inclusivity in both legal and advocacy spaces.
Community Administrative & Support Team
Our community administrative and support team works to make sure that the COVID-19 Longhauler Advocacy Project is operating smoothly. By providing graphic design, website assistance, and other administrative services, our team ensures that crucial information is readily available to community members. We're dedicated to making sure that every longhauler gets the support they need to make a full and speedy recovery.
Georgia is a first wave longhauler from March 2020, assisting with Facebook community administration and outreach.
Georgia Linders

Wisconsin
Holly is a first wave longhauler from early March 2020, assisting with web and media design.
Holly Broman

Hawaii
Cynthia is a first wave longhauler from March 2020, assisting with graphics and social media.
Cynthia Adinig

Virginia
Anne is a January 2021 Longhauler, assisting with Facebook community administration and administrator & moderator training.
Anne Richards

New York
Administrator/ Moderator Division Leads
The COVID-19 Longhauler Advocacy Project exists to provide a platform for Longhaulers to come together and support each other. Our administrators and moderators work to ensure that the information we provide is up-to-date, reliable, and relevant. We want to increase public awareness of the challenges Longhaulers face and advocate for better healthcare, research, and policies to support them. Join us in our mission by becoming a member of our community or by contributing to our cause.

Our Community
C19LAP FB Chapters
These chapters are a great way to meet other longhaulers near you or within your community who can relate to life with Long COVID, to find local or relevant resources, and organize local or community specific actions.