The COVID-19 Longhauler Advocacy Project is a 501-(c)(3) Non-Profit Organization dedicated to advancing the understanding of Long COVID and
expediting solutions and assistance to Longhaulers and their families through
advocacy, education, research, and support.
Formed in June of 2020, during the first few months of the COVID-19 pandemic, we have become an organization known for comprehensively advocating on behalf of the Long COVID community. We are steadfast in ensuring no one is left behind and that requires advocating for all of the conditions associated with Long COVID (LCAC- Long COVID & its Associated Conditions). As millions of Longhaulers have now been left disabled, we must also prioritize the role of disability rights and advocacy in the work we do.
We are proud to be members of the Disability Economic Justice Collaborative, the National Network for Long COVID Justice and the Long COVID Alliance. We co-drafted the "Treat Long COVID Act" with Representative Ayanna Pressley and co-drafted a
$60 million House Appropriations Committee request with Representative Cori Bush to assist HHS to begin tracking and researching Long COVID. We have worked with several other lawmakers and government agencies such as the White House COVID Response Team, Various divisions within HHS, and the NIH.
While we operate on various social media platforms such as Twitter, TikTok, Instagram, and Youtube, Facebook is where we originated and house our "main group" and our 51 state chapter groups, including (D.C) and 9 special populations chapter groups (Pediatrics, Teens, Pregnancy & Family Planning, Caretakers & Single Parents, Educators, Healthcare Workers & Researchers, First Responders & Military Personnel, BIPOC, & Fundraising & Assistance for Longhaulers).
We work closely with other trusted and credible Long Covid and LCAC organizations, the patient population, researchers, medical providers and lawmakers to continue to raise awareness and provide education about Long Covid in addition to fighting for the crucial resources so desperately needed by the Long Covid community. We continue to base our advocacy on the experiences and needs of the Long Covid community by continued outreach and partnership with the community and we work to serve as an amplifier for the systemic and comprehensive issues the Long COVID community faces, and will continue to face for a very long time.